Saving My Life

Anything I post on here about PCOS or any other condition, is general information or information I've accumulated in my experience having PCOS or other conditions. I'm not a doctor, so nothing I say should EVER take place of a real diagnosis from your doctor. My eating plan described on this blog is one I've made for myself and I'm constantly changing it according to my body's needs.

Thursday, August 12, 2010

Had a CAT scan

Had a CAT scan....came back negative for infection. Bummer. I'm feeling a lot better though...better than I have in months and months...or has it been that long...I'm not sure b/c I haven't kept track of the days. I've been in a perpetual state of pain.  I'm going to use this time to get my house back in order and get prepared for the upcoming homeschool year. THEN I will be back here for normally scheduled programming. The ENT guy bets its a coincidence that I'm getting better on these strong antibiotics.....he mentioned all of this either having to do with the TMJ or he thinks I could have Trigeminal Neuralgia which is what PJ said in the beginning of this crap. I just still have this feeling that it could be infection. I've been on this very strong antibiotic for a little while....what if any infection that was there is gone now but the germ could still be there waiting to pounce again once I come off the medicine? I kinda had a panic moment today after they told me the CT scan of my sinuses came back normal....b/c I've been in the worst pain ever and imagininig it coming back when I've felt so good for the past few days is very disheartening. I akin it something like killing a puppy. :o(  Anyhoo, just thought I'd update you guys. I really appreciate the support guys. Sometimes it feels like I get more support from friends....even from afar....than I do here at home. David's just been waiting for me to get better so he doesn't have to act compassionate anymore....it's a very hard emotion for him. I promise I'm not being a smart ass....he admits this himself...in his own words. Which is kinda weird to me b/c he's so good at being compassionate with our kids. Oh well. I guess I should just be thankful that he's at least "acting" compassionate. Life's definitely been more bearable with him since he finally figured out that I haven't been faking this shit all along. I think he finally understood when my sister-in-law told me that there is a strand of MRSA that they treat with Levaquin (the drug I'm on) and if the Levaquin doesn't work, the patient is bascially screwed.....is what she told me. I relayed this info to him.....he was a little quiet then....and a whole lot more helpful. He's even stayed home a few times to help me with the kids. I've reminded him he shouldn't have just assumed he'd be the one to get sick....and I've have to take care of him. I told him those marriage vows (in sickness and in health) work both ways buddy. I'm hoping one day his compassionate "act" will turn into a real one....seriously.
   In the meantime, I've began enjoying things I truly, truly missed.....like spending quality time with my babies. I've been reading books to them and singing to them every night and I've enjoyed it more than anything in the world. I took my daughter out the other day b/c I told her after this stuff was over that I'd reward her for all the help she's given me with her brother. So, we got manicures. ☺Laters Gators.

5 comments:

  1. well, compassion is learned.
    Hope the pain stays gone hon.
    enjoy getting the homeschool around. I am in the middle of that myself.
    Keep up the good work with yourself.

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  2. It is so not fun not knowing what is causing your pain. However, when you see your doctor again, please make sure to point out that the antibiotic made a big difference. That means something. In other words, there must have been an infection somewhere. If you didn't have an infection, the antibiotic would not have helped. Period. That is the way it works. Your doctor knows that or should. Now... that is not to say that the infection is/was your only problem.

    Another thing to consider: if your doctor does not listen to you. Change doctors. I don't know what sort of insurance you have, but usually a doctor who is a D.O. vs. an M.D. is going to be more likely to listen and try alternative stuff. OR push your current doctor to refer you to a specialst. Whatever he/she thinks might be going on.

    As for your husband, I am surprised that he isn't more compassionate. Usually people who have medical isssues of their own are more compassionate toward others who are ill.

    Hang in there.

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  3. Hey Robin, thanks for the advice. I had no clue what a D.O. was. :) I've been on Google trying to find one in my area. Thanks!

    Thanks Chris. I started getting some of the pain back today. I'm hoping it doesn't go full blown. We'll see. Hope your school year gets off to a good start. :)

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  4. I hate to say it, but MRI's actually show different things than CAT scans. If it is suggested I would do it. In my job as a nurse I've even suggested to docs --to go for a mri instead of just CT and sure enough..there it was on mri. But I'm just a nurse....

    I'm glad you've had a little insight on the issue , and hope is gets better . It may never be definitively diagnosed. I had a mystery illness when I was in my 20's--I saw many specialists, had multiple tests, had to have labs weekly for a year and took steroids for a year. The doctors told me what it likely was but they couldn't tell me how , why , what exactly it was. One of the radiologists told me this , that the condition may never truly be diagnosed but as long as I'm responding to treatment and healing then be greatful and encouraged. It did and hasn't come back.

    Life is stressful in PJ Geek's house right now and my TMJ and Irritible Bowel syndrome are kicked up. This is my mind -body connection dealing with stress and emotions because my husband and I are not really communicating well and I'm not bingeing on food to deal with it.When I talked to my husband about how this lack of communication is affecting me he made an effort and my symptoms are getting better.

    I AM NOT SUGGESTING this for you . I just wanted to share. These are real medical conditions you and I are dealing with.

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